Comments for case 1

.Comment 001

what treatment plan?

Comment 002

I had a soccer ball size hemangioma on the right lobe of my liver and had to have 70% of it removed. please e-mail me at tbowman613@aol.com

Comment 003

my daughter, at age 21/2 yrs. was diagnosed with a cavernous angioma of the brain stem. We have been told that she is an anomaly/ miracle. Sixteen surgeries later and a V.P. Shunt, we would like any answers. We can be e-mailed @ roninjkw

Comment 004

I had gall bladder removed 18 months ago. Increased R upper quadrant pain followed--but it is infrequent--2-4 "attacks" per month, severe, sweating, double over, and last only max. 15-20 minutes. No pattern of relationship to food, sleep, etc. Elevated liver enzymes are reported, but are inconsistent. I was told that I have a hepatic hemangioma--but of no concern--benign-a defect from birth. Where can I get informaÑ? E-mail LPiurowski@snet.net.

Comment 005

I would like to know your protocol for obtaining this study. Cindi L. Luckett, CNMT, RT(N) MUSC Medical Center, Charleston, SC e-mail either HDLuckFam@worldnet.att.net or clluckett@aol.com

Comment 006

Comment 007

Please send information on how to obtain the case study about hepatic angiosarcoma mimicking cavernous hemangioma as soon as possible. My pregnant sister (31weeks)has a large (15cm) mass on her right liver lobe. Many Thanks. Bakerneamtz.judith@adlittle.com

Comment 008

Please post the reference of the single case of hepatic hemangiosarcoma mimicking cavernous hemangioma alluded to in your DDX. Thank you. M J Castillo, MD, PhD; kookaburra@mci2000.com

Comment 009

Recent MRI tests showed 10 cavernous hemangiomas on five lumbar vertebrae as well as in the hip joints. I have been suffering from constant back pain for quite some time; also have a history of endometriosis and massive pelvic adhesions due to peritonitis approx. 12 years ago. I am supposed to be scheduled for a complete bone scan and was wondering what this might show above and beyond the MRIs. My orthopedic surgeon teñme my condition is inoperable; any thoughts? kareno@azlink.com

Comment 010

In early 1998 my mother had a tumor removed that was the size of a grapefruit. Since then they haven't given her long to live. We are stumped to find some kind of alternative medical treatment. In the past month they have found new sites of cancer in her hips lower back bone, shoulders, and at the base of her skull. We are desprate to hear of any new treatments other than the radiation and the chemotherapy.

Comment 011

I have diagnose with Hemangioma of the liver I am 52 years old male.I want to know if there,s any treatment beside surgery.Email:chiasson@mnsi.net

Comment 012

I am a 51 year old female with angiosarcoma. Would like to hear from others with this DX. Have had no tx. E-mail @ rbdeer@telapex.com

Comment 013

My son, 27 years of age, was diagnosed at 8 years of age as having an hepatic angioma tumor of the liver, approx grapefruit size. 1/4 "in" the liver, 3/4 descending down from the liver. We were told it was inoperable because the major artery to his lower extremities is directly connected to and flowing through this thing. We have lived in constant dread that he might suffer a blow to his torso causing this to rupture. Weôld appreciate any information on the subject. Lindaalb@awwwsome.com

Comment 014

Najat Email:najat4@hotmail.com.batelco.bh doctores have foun maltiple liver masses the giant one size is 11cm and seen in right side of the liver . is there a special diet to follow or any specific drugs to be avoided any other treatments thankyou

Comment 015

Rib44@aol.com I am a 42 year old female who was told that I have a 2.9cm lesion in my liver, that half my liver looked normal and other half with fatty infiltration. Took CAT scan, ultra sound, dynamic MRI and than a red tagged blood cell test--all in that order. Red tagged blood cell test confirmed that it is hepatic hermangioma. I was told the last test is 99.9% accurate. Would like to know what causes hepatic hermaJma--weight gain? What is the treatment? Does it need to be removed--by medication or surgery? Can it become malignant? PLEASE RESPOND to Rib44@aol.com

Comment 016

My mother is 51 and she has cavernous hemangiomas on hre liver, we need a great doctor, the are rupturing and she needs to have them removed, now!!!!!!! we need help finding the best doctor, she is very nervous and the doctors she has dont seem to want to risk doing the surgery themselves. e-mail me at, Tmemery@hotmail.com Thanks for your help:)

Comment 017

I am a 37 year old female and have been diagnosed with a gigantic hemangioma, 12cm, and have been told that I must have 50% of my liver removed. I am terrified please give me information on alternatives, if any. my email address is legs@hotmail.com

Comment 018

I am 37 years old, suffer from systemis lupus and am under treatment with oral cytoxan 1500mg every 17 days for lupus nephritis. Began to have discomfort under my right rib cage and had an ultrasound done revealing a 2.1cm hyperechoic area consistant with hemangioma. My questions are (1) can chemotherapy cause this? (2) do hemangiomas ever go away? (3) what are the various treatments?

Comment 019

I am the above comment #18 and forgot to leave my email address rjmchugh@erols.com Sorry and thanks for any information on this.

Comment 020

I have been told that I have a hemangioma located on my vertebrea at L-3. The doctor says it's in a very strange location. He doesn't believe that hemagiomas can cause symptoms. However, I've been having severe back pain and the back of both of my thighs are completely numb and my legs are very weak. Could the hemangioma be causing these problems? Also, is it possible for the hemangioma to rupture? If so, is it dangerouÕPlease email me at Chem Lover@aol.com

Comment 021

My name is Kim. I can be e-mailed at kimijohnson@cs.com My daughter is 18 and was diagnosed at birth with a cavernous hemangioma on her left flank. It bled so much, that at the age of 5 I finally found a plastic surgeon to excise it. When he opened her he said it looke like a can of worms...there are multiple hemngiomas in and aroung her spleen down into the femerol ring. I can't find anyone who knows anything about them.{ the Doctors I have found look in books and shake their heads. Their treatment is..watch her. As she has gotten older, she is experiencing more pain and swelling. Any information would be appreciated

Comment 022

Name: Joan email: joandanrich@ameritech.net I am a 56 year old woman, recently diagnosed with a 18 cm liver hemangioma. I had my gallbladder removed two months ago. My liver specialist said he usually removes these but I am not having any pain since my surgery. I have decided against surgery and will have CT scans done every six months. I'm taking hormones and wonder if they should be discontinued as I read they can cÓ the hemangioma to increase. My doctor says the hemangioma doesn't interfere with liver function. How can that be when it covers so much of my right liver lobe? I've not heard of anyone with tumor this big. Why have the surgery if you don't have symptoms that you want desperately to end?

Comment 022

Comment 023

I have been diagnosed as having a giant Hermangioma inside of my scrotum. The case has been studied by several doctors (photos etc) and became appalling bad in a matter of weeks... I neglected treatment due to embarrassment until I felt that it was life threatening.. I need to know of similar cases... I have photos I can email.

Comment 024

Rod McKenzie email rod_m3@hotmail.com I am a 44 yr old male who has been diagnosed with a Cavernous Hemangioma of the brain stem. I would like info. on treatment alternatives. I can b emailed at rod_m3@hotmail.com

Comment 025

My father was diagnosed with a hermangioma located at the L-5 vertabrae. It has been determine that this was the cause of his siatic like pain he is experiencing in his lower back and legs. Doctors want to go through the groin area and cut off the blood supply to this tumor to stop it from growing. Then they want to shrink it with radiation and once it is small enough they will fill the area once occupied by this tumor wiÒement to fill the void. However, they are first trying to determine if the hermangioma is supplying blood to the spinal cord. Does anyone know about a book that contains informaiton on this? Does anyone know of a good neurosurgeon located in the NY Metro area? Thank you. cmg@spallp.com

Comment 026

I would like information pertaining to the case referred to as hepatic hemantiosarcoma mimicking a hepatic hemangioma. My email address is uncrnhite@aol.com. Thanks.

Comment 027

I have a Herangioma under my left check bone and is giving me pain. Have fever and

Action Plan.

39 Male

Comment 028

I had a ultra sound done due to sever persistant abdominal pain after an MVA it showed I had a hermangioma on the liver. I was told I have it and was left at that. Could it be the result of the MVA and what problems can occur because of it? e-mail berdsnest@hotmail.com

Comment 029

I'm 37 year old male with a large cavernous hermangioma on my left upper lip. Currently, it's about 6.3cm (2-1/2") x 3.8cm (1-1/2") in size and very swollen. If fact, it "baloons" about an 3.2cm (1-1/4") away from my face. It produces a very pulsing pain. Also, my gums are turning very dark in color. It seems that much stress and lack of sleep increases the blood storage, but when firm pressure is applied, it semi-restricts the flow of blood and will give me some temporary relief. Will this cause another problem on other parts of my face?

I was originally diagnosed with this condition in 1981. It first manifested itself about the size and color (red pigmentation) of a standard pencil eraser. At that time I experienced no pain. At that time it was only a cosmetic condition. When it increased to the size of a dime, it was treated by surgical removal along with about 30% of my upper lip.

What kind of "state of the art" treatment can be recommended? I'm wondering about cryo and laser therapies. I'm told that surgeons may have to go through my heart to find the "feeder" vein. To do this they cannot give me any anethesia. Isn't there some kind of machine that can detect all of the veins in ones body, e.g., my cheek and neck? I would appreciate it very much if someone would contact me ASAP, as I must undergo removal very soon. Thank you in advance for any info. you send me.

You may e-mail me at: jacjglasel@aol.com

Comment 030

Stats: female..54yrs. Cancer survivor 1975, complete hyst, menopause,estrogen10yrs..3cm lession found on liver after auto accident-1986.Diagnosed with cav.hemangioma(central)extreme pain and fatigue."watch & see" after each MRI 6 month intervals. Growing! No pain meds! have "ankylosing spondylitis"..anti-inflamatories also stopped. ACID-REFLUX.What about"laser therapy"? other pain meds??? e-mail: mell.o@shaw.ca

Comment 031

My name is Milena,I'm 24 years old ,I have been diagnosticated with 3 hemangiomas in the right lobe of my liver I will apreciate very much if you can send me some information about it to: milenasinger@msn.com,thank you very much.

Comment 032

Haemangioma sufferers, Please browse www.angio.org (Angiogenesis Foundation) for the latest research of anti-angiogenic drugs and also look at Dr. Judah Folkman's latest lecture transcripts and research papers on angiogenesis.

From another liver haemangioma sufferer

Comment 033

I am a 39 year old female,at age 28 was advised of a liver hemangioma,not to worry I was probably born with it. At age 37 due to cancer in my office, I asked to have this is checked.Here I now sit with a 9cm by 14cm hemangioma, 2x3cm 11 years ago. I have had two children in 92 and 93 very close together. Some research I've done says maybe it enlarges during pregnancy. I'd like feedback if anyone has any. I truly do not want to go through that surgery. I sit here with no pain, just frustration. I sometimes feel as if I'm a walking time bomb. lisavee13@yahoo.com

Comment 034

I am a 37 year old female diagnosed with hepatic hemangiomas (nearly 100 small ones) and one hepatic cysts (2cm) about 3 years ago. Were discovered by ultrasound when I complained of severe nausea and vomiting for several months. I have some pain in my liver area. I have read that hemangiomas don't generally cause symptoms, but because of the numerous amount, should I worry? lsoneff@ouc.bc.ca

Comment 035

I have a 4.3 cm posterior right hepatic hemangioma. I have been disbled with severe upper abdominal pain for two years. MY HMO doctor refuses to believe the hemangioma might be causing the pain. I spend most of my time in bed. Any movemnt and bending in the waist area increases the pain. I have had nausea and vomiting for over a year. I have sharp stabbing pain in the area of the liver and a constant grinding pain in teh right abdomen. Pressing in the right upper area causes sharp pain during examination. I am in so much pain that I am unable to function normally. The pain meds they give me are not effective. Is there any doctor out there who would operate on me. Is there anyone with information. I am desparate and I am getting to the end of my rope. I need help. Irene, goddessmania@earthlink.net

Comment 036

I am a 37 yr old female with a small hemangioma on the inside of my bladder. I suffer from frequent UTIs and constantly test with blood in my urine. What can I expect and is there a type of specialist I should seek out?

ImaCandleLady@Hotmail.Com

Tks.

Comment 037

Comment 038

Sandi Bennett, ssrpb@aol.com I have just been given results of a giant cavernous hermangioma on my liver. I have had several test including a red blood cell tag test. Now I am going to have an MRI where a suspicious spot still is showing on the test. Should I be concerned for cancer?

Comment 039

I had an MRI reading that say's that I have a very small (5mm) atypical hemangioma in the superior left lateral apect of the C7 vertebral body. I have a sharp throbbing pain, as well as pain that feels like it's on a nerve. My doctors told me not to worry about it and haven't asked me to get any follow up exams. I am extremely nervous about it and would appreciate any information on this condition. my email is lisawright46@yahoo.com

Comment 040

i am 27 years old and have been disgnosed with a hepatic haemangioma of about 3cm. I experience frequently abdominal pain us and ct did not reveal anything new. I need some information on the risks of pregnancy. Is it life threatening? My email address is yetti@di-ve.com Thank you

Comment 041

Well my new MRI shows tiny hemangoimas on L5 I have had 2 MRI and neither showed this , But I also had the IDET surgery in June 2002 . please e-mail me mspma1165@aol.com

Comment 041

Well my new MRI shows tiny hemangoimas on L5 I have had 2 MRI and neither showed this , But I also had the IDET surgery in June 2002 . please e-mail me mspam1165@aol.com :9

Comment 042

I am a 59 year old male with Beta-Thelasemia anemia and three hemangioma liver cysts and one spleen cyst. I am taking the nuclear x-ray and upper/lower GI tests within 2 months. Should I have these tests done sooner for possible colon or other cancer detections? My GI doctor has my GI test scheduled for late August 2003. It is now June 11, 2003. Please advise ronjogon@hotmail.com

Comment 043

I 'am 38 yr. old white female that has recently been dx with a cavernous hemangioma in the right lobe of the liver. My local sugeron is uncertain at this point as to wether or not to actually call it cancer,although it seems that way my father experienced the same on a kidney 7 yrs ago and it was cancer and had it removed at the Cleveland Clinic. I will be sent on to the Cleveland Clinic ASAP. I have spent the last 4-6 months in and out of the local hospital with severe pain in entire ABD area and upper right quardant,very fatigued, nausea and vomiting.......etc.....like i have the flu. My my medical doctor said it was depression and anxiety......well i do now! I live alone with two younge kids! please respond to juscuz@adelphia.net for support and answers....thanks for taking the time to read this.......best of luck everyone.....justine in ohio

Comment 043

juscuz@adlephia.net

Comment 044

I am a 42 year old female waiting for a diagnosis on a 3cm atypical hemangioma (vascular tumor) on the liver. I went to the doctor because of abdominal pain and nausea. I have experience right middle back pain for 6 mos and worried about what that could be. I am told by Doctor is a pulled muscle. I don't think so. Ultrasound revealed spot on liver, MRI found atypical hemangioma. AFP tumor tracer negative. Is this possible cancer? The doctor mentioned possible connection with smoking and birth control pills... Does anyone know what I should expect to be told next? Cancer? Surgery? Write to Karen-Sandy@juno.com Thanks!

Comment 045

I had a hermagioma blood tumor when I was born lucky it was removed before it burst. I still don't know what it is or if it is? Email me it you do know starmoon3175netzero.com@netzero.com

Comment 046

sorry to hear about your case. alough i am having some problems and researching what my problem could be.i am 44 male found blood in my urin. now i am going in for a mri of the liver. what were some of your symstoms if you dont mind me asking. i hope all is going well for you. it does state on my impresion that i have a wedge shaped enhancing area within the right lobe of my liver and that it could be due to hemangioma or focal nodular hyperplasia. my email address is p1c42@aol.com

Comment 047

I'm 21 years old. I have a cavernous haemangioma on my brain. I suffer from headaches and focal seizures. Surgery is out of question as it's too risky. I'm seeking any information or someone who has the same condition as myself. I am finding it hard to find anyone with this or info. You can reach me at nay_19au@hotmail.com

Comment 048

My sister is 46 yrs old and has been dx with Haemangioma Cavernous Hepatic tumor on her liver. She was on hormomes and was told to stop taking them since this could be causing it to grow faster. She has since been given a hormone patch to wear since it would not be the same as taking a pill. She suffers from a lot of pain on her liver and is often holding that area with her hand. The doctor is still testing her frequently but also searching to see what can be done. He told her it is a birth defect that affects 3% of the population and the pain is from the tumor. drrider@scattercreek.com

Comment 049

PAM, Om2d@aol.com.

I am a 39yr old B/Female and was diagnosed with a hemangioma of the liver. I was having problems swallowing food and some pain in upper front area of my liver. I am requesting any info you can give me about Hemangioma's. Last year aroun March i had my first and hopefully my only surgery for a hysterectomy (very large fibroids)which i was able to keep my ovaries. Is there any connection to the surgery and now the finding of the HEMANGIOMA. I was told the size was 6 sonnimeters, is that very large? and what is the likely hood of CANCER? Thank you for all your help.