.Comment 001
The plain film would be of value for residents.
Comment 002
Comment 003
PALMAR VIEWS OF THE HANDS MAY GIVE MORE INFORMATION. INTERESTING STUDY.
Comment 004
chooch1@mail.idt.net Dear Doctor: My son was just diagnosed with Enchondroma of his left middle finger. He has had this lump along side his knuckle for sometime now. I thought that maybe because he is left handed, this lump was formed by the way he holds his pencil. upon careful examination while doing his homework, I noticed that this really had nothing to do with this at all. I scheduled an appointment with a pediao orthopedic. Unfortunately, we needed to see him before the scheduled appointment. As a result of a sports injury, he pathologically fractured his middle finger. While viewing the x-rays with the doctor, he showed me the tumor growths in his finger. It appears that he has two (2) tumors in his finger. The largest seems to be growing beneath the knuckle and involves part of the growth plate. We are currently treating the fracture. The orthopedic has scheduled an MRI and also a bone scan. He seems to think that possibly he might have more of these tumors. While looking at the x-ray, I mentioned to the Dr that Terence did have another injury about two (2) weeks ago involving the top portion of his hand. He has been complaining that the area is sore and we have been treating this with ice packs. Dr also seems to feel that this area, also has tumor involvement. I guess this is why he has scheduled more extensive testing. Is there any information that you could direct me to in this area? Is this a common disease for a child? Terence was also born with flat feet. The better of the two types I guess you could say. The reason is that he has loose ligaments. He is very involved in baseball. We were advised that because of his ligaments, he should not play any contact sports. My question is surgery. After his fracture has healed. The orthopedic is going to remove these tumors from his fingers. He is concerned about the one closest to the growth plate. He said that if he removes all of the cells chances are they will not grow back. The tumor closest to the growth plate is his real concern. Our's also. If he does not remove all of the tumor, it will grow back resulting in another operation. I was told that in order to provide good bone growth, that they needed to take some of his hip bone to replace the bone loss in his finger. Until we complete the testing. I am not sure as to if there is any other bone involvement. With the exception of the top of his hand. I understand that in your profession you must be very busy. If you then would direct me to the appropriate site or furnish me with any information regarding this disease, I would greatly appreciate it. Will he have the strength in his left hand? Will he be able to actively participate in sports? Will the hand open and close like normal? I have so many questions. I just don't know what to ask first. Thank-you for listening, Cheryl O'Dell NJ
Comment 005
usfuncpl@ix.netcom.com cindy gillespie, diagnosed with enchondromas in right humerous (arm) and in both tibias. 39 yrs old, very active physically, wants to know if continued vigourous excercise is possibly dentremental to this condition. any other information would be great. I am using anothers E-mail address, my home address to mail info is: 5310 Surrey Rd. Montgomery, Al 36109 Thank you.
Comment 006
I am a 39 year old female and have an enchondroma in my right ring finger. A brief history - I injured my hand two years ago and was actually having problems with my middle finger. An x-ray of my hand showed the enchondroma on my ring finger. I underwent surgery on my middle finger about a year ago, as I'd developed a painful cyst on it.The cyst was (which was between the bone & the tendon) was removed and t! endon smoothed out, as it was quite severly frayed. This took care of the pain in my middle finger, but during the past several weeks my ring finger has gotten progressively more painful. A comparison of an x-ray taken about a month ago to the one taken two years ago shows little change in the enchondroma. There doesn't appear to be or have been any fracture, but the pain is definitely where the enchondromas is located. Could the injury I sustained two years have anything to do with the development of the enchondroma and what could be causing the pain? My E-mail address is UVJSANT@IHC.COM
Comment 007
I am trying to find information about Keinbach disease of the wrist. Haven't found it anywhere
Comment 008
I am a 48 year old female with enchondroma on my left middle and ring fingers. I suspect the cysts originated from an injury as a very young child. (I had a window fall on them) The doctor disputed that theory. To my knowledge I have no other cysts which, according to the doctor, is unusual. They have appeared to remain the same size over the years, have caused me no pain and little movement restriction. I've wonder' bout the possibility of it being hereditary as my sister and a great aunt on my mothers side both had similar growths. My sister had a hemangioma on her tongue and my aunt had a bony growth configuration on the roof of her mouth. There may have been others I am unaware of so will research this more. I am planning to have the less involved cyst removed first so the doctor can better assess the situation. Since the surgery would be for primarily cosmetic reasons, I am apprehensive it may exacerbate the situation. Any information you could E-mail me would be greatly appreciated. Johnn@Cornhusker.net
Comment 009
I have been diagnosed with a possible enchondroma tumor to right femur measuring approx. 4.5cm in length 2.2cm in ap diameter and 2.2 cm in transverse diameter i am having severe pain underneath right knee cap with decrepitus what can be done to end this pain and discomfort. t4taylor23@hotmail.com any reply would be helpful
Comment 010
fdgtrans@ican.net I am hoping that your centre can give me advice on what I should do about my situation which is the following: I am a 46 year old woman who has been diagnosed with "multiple punctuate calcifications at the distal shaft of the right femur, most in keeping with benign enchondroma". The reason this was discovered was the fact that I was involved in a car accident in which I suffered whiplash and then notice in in my knees which has lasted for months. I was sent for x-rays and then a bone scan and this was what they discovered. The specialist said it was a benign tumor, not to worry about it at this time. I asked if it should be removed and was told not to do anything to it and that they will keep it under observation (go for a bone scan in six months). Do you agree with this or should something be done about it right now. I am afraid that what they are really saying is, "let's wait till it turns malignant until we touch it". I was recently speaking with a friend whose father was operated on for a "rare benign cist" in the scrotum area and they then treated him with chemiotherapy, "just to be sure". I always thought that chemiotherapy was administered ONLY when malignant. Is this true. Should I also be treated now before it turns malignant?
Comment 011
i am also looking for keinbach disease info. Any ideas? rhonda muscat@voyager.net
Comment 012
Comment 013
Desperately seeking info on Keinbach's disease!!!Is anyone out there listening??Please reply!!!Boydas@msn.com
Comment 013
Desperately seeking info on Keinbach's disease!!!Is anyone out there listening??Please reply!!!Boydaz@msn.com
Comment 013
Desperately seeking info on Keinbach's disease!!!Is anyone out there listening??Please reply!!!Boydaz@msn.com
Comment 014
I am a 43 year old Australia female who has been diagnosed with a encrondromas? chondrosarcoma? in the surgical head of my right humerus. Unfortunately Australia has very little expertisee in chondrosarcomas, most orthopedic surgeons see only a hand full of cases in their entire careers. I have had a second bone scan, in Australia referred to as a DSMA that is used to distinguish between encondromas and chondrosarcomas, thig st was read by the radiologist as been positive for a chondrosarcoma. However, the orthopedic onocologist I was sent to (there is only one in our state) dismissed my GPs and two other orthopedic concerns and advised me to leave it alone. Not even to attempt to remove the enchondroma...this doctor also became very annoyed at me asking about his level of expertisee in the area of chondrosarcomas and when asked how many cases he had seen in the last few years he stated "enough". However, the government cancer registry has only two cases recorded as been notified in this state int he last several years. I would appreciate any information any one cares to offer. e-mail GKM1@hotmail.com
Comment 015
If ANYONE has information on Keinbach's disease, please send it to me. I can't find anything!!!
Comment 015
If ANYONE has information on Keinbach's disease, please send it to me. I can't find anything!!! My addy is kspinler@webtv.net
Comment 016
Comment 017
ds.henderson@home.com Diag. with enchondroma of right humerous in shoulder. How can I be sure it is not a chondrosarcoma instead of an enchondroma?
Comment 018
Hi, I would like infomation on Keinbach's disease. wmclk@btigate.com
Comment 019
Am also looking for information about Keinbach's disease of the wrist. Is it related to the cysts that others are writing about? URGENT. Please reply to cpoulson@uwm.edu
Comment 020
kitticray@cs.com
Keinbach's disease, try this spelling keinboch
the following website is a place to start, then do a search with the different spelling
http://www.stepstn.com/cgi-win/nord.exe?proc=GetDocument&rectype=0&recnum=604
Comment 021
jkennedy@cstn.net I too am having surgery for Keinbach's disease. Anybody have any information on this? Please send it my way.
Comment 022
go to www.ask.com and type in Keinboch's disease and you will find info.
Comment 023
My 15 year old son was diagnosed yesterday with Keinboch's disease. I found good information at this site:
www.visitations.com/kienbock/articles/index.htm
Hope it helps you!
Comment 024
Found info under different spelling. . . Keinbock's
Comment 025
Rosemary Newtree@cs.com comment for those wanting to know something about Keinbock Disease. This is the correct spelling {{{Keinbock]] I repeat
Comment 026
robin-flores@msn.com
I was told I have keinbock disease in my right hand. I is so far along the launate bone is completely flat and the other bone are cracking. My questions are that they will be fusing my hand I would like to know about long the recovery will be and the use and strength in my hand that I should expect after the surgery. I am a working mother and have children to support so I would like to know what kind of disablilties I might come across because of this problem. Thank you
Comment 027
I have been diagnosed with enchondroma of the right humerous. It was found due to a fatty tissue lipoma the popped up on my right shoulder after a car accident. In evaluating my lipoma they found the tumor of the rt.humerous. Do these two things go together,are they separate and what is usually the procedure of a worrisome enchondroma of the rt.humerous. russelldeen@aol.com
Comment 027
I have been diagnosed with enchondroma of the right humerous. It was found due to a fatty tissue lipoma the popped up on my right shoulder after a car accident. In evaluating my lipoma they found the tumor of the rt.humerous. Do these two things go together,are they separate and what is usually the procedure of a worrisome enchondroma of the rt.humerous. russelldeen@aol.com
Comment 028
ROSEMARY RUBNER {Newtree @cs.com]Twenty years ago Ihad surgery for lunate fracture cyst 6MM. A BONE GRAFT WAS PERFOFMED CYST EXCIESED Left wrist.April 2001 i fell at work on my left wrist now i have pain and stiffness I WENT TO A HAND SPECIALST I HAD A MRI THEY SAY THAT IT IS KEINBOCK DISEASE OR A CYST IN THE LUNATE AGAIN BUT NO LUNATE COLLAPSE.How can this be. twenty years ago they ruled out keinbock disease, i do not believe there results because they see a lunate black area. Would you thanks for reading this.
Comment 029
I had surgery in 1993 for Keinboch's disease and a ganglion cyst in my left wrist. Fusion is not the way to go. I had a piece of bone removed from my radius which shortened that bone to promote blood flow through my lunate which was already degenerating. Was the best thing I could have ever done, suggest it to all that can go that route. kkoch@tcco.com
Comment 030
Nancy Buffington njb@udel.edu
I had surgery for Keinboch's disease in the mid 1980s; a silastic replacement for my left lunate, which had degenerated quite a bit by the time I was diagnosed and had surgery. I had to go to orthopaedic surgeon specializing in hands before I was correctly diagnosed. It's now been more than 15 years and I'm having little trouble, though I'll never have "normal" mobility and strength. I have some old materials on the "disease" but I'm sure there's more current stuff.
Comment 031
victoria.riccardi@nera.com
I am in search of information on Keinbach's Disease. Why can I not find anything?
Comment 032
Lsymphanie1024@aol.com I Am searching for any imformation on Keinboch's Disease,for which i have been recently diagnosed with.Thank you
Comment 033
This is to Comment number 013 and 015. My husband has had the operation for Keinbach's desease. You can contact him at the above e-mail address. reganj449@rcn.com
Comment 034
Angie O'Donoghue Jimazdi@mediaone.net Comment for Case # 007 I was diagnosed with Keinbock Disease in 1988 and went thru surgery in 1989. I would be happy to provide any info from a personal point of view with 13 years experience.
Comment 035
Barbara Schmidt Steveschmidt@ezol.com two mo. ago i noticed pain in my right arm and shoulder,last week March 30th I woke up with more pain there by the next day I lost mu motor skills in my rt arm, the Er said I had a tumor in my right shoulder,recommended MRI, My own Dr. also said I needed a MRI, the Ortho Doc said I just needed physical therapy and a cortisone shot, Cancer runs rampant in my family, help please
Comment 035
Comment 035
Barbara Schmidt Steveschmidt@ezol.com
Comment 036
Jennifer- mystiquedragon@hotmail.com
i know very little of keinbach's disease, it is hereditary, my father has it, so do I and my older brother. if anyone else finds more info on it please email me.
Comment 037
send me some info on the keinboch disease plaese thanks.
Comment 037
send me info on the keinboch disease please send it to endo_4@hotmail.com thanks my dad has it and want to know more about it
Comment 038
Joe email joe@micro.com
I just had surgery for Keinbock where they did a vascularized bone fom the radius to the lunate. My pain level seems to be getting better but the tissue around the Lunate is still very tender. Better but not fixed. Hope this helps
Comment 039
Jandysam@aol.com
Comment 039
I was diagnosed with Keinbach's disease many years ago in my right wrist. At first I was told it was tendonitis. Basically it's painful because all or part of one of the bones in your wrist has died. I hit a rock with a golf club and the vibration from the blow was sent into my wrist temporarily shutting the blood off to that bone( in my case the lunate bone in the center of my wrist)long enough to cause part of it to die. It's actually black on the MRI. I have all but eliminated the pain by wearing a copper bracelet. Until I did that I could not bowl or play golf. Now I have pain only once in a while usually in the cold winter weather or the change of season like this time of year. Try the bracelet it can't hurt.
Comment 040
My husband had a small fatty tumor removed about 10 years ago. They told him it was lipoma and not to be alarmed. Now he has over 70 on his body. His chest, back, arms, and thighs. I need to know of a specialist that deals with this. Is there something that can to be done to prevent anymore from growing? I am so worried about him. If anyone has this problem or knows how to help please e-mail me. kimberlee1020@hotmail.com
Comment 041
My doctor thinks I might have Keinboch disease in my wrist. Can anyone tell me more about this???
Comment 042
Chris Durham. chrisdurham1@btopenworld.com I too have been diagnosed with Keinboch's disease to my right wrist. This was in 1998 and since then I have had little problem with it. unfortunately I was assaulted earlier this year which has kick started all the pain and lack of mobility again. I am led to believe that keinboch's is the devascularization of the lunate bone to either wrist.(Where the blood supply to a bone is stopped either permanently or temporarily.) I am the only person in my family to have the disease and have been told that it is not hereditary. The disease may give pain and discomfort as well as reducing the mobility and strength to the wrist. I am in limbo at the moment as whether to have an operation or not. If any one who has had either radial shortening or fusion can email me it would be appreciated.
Comment 043
I believe your spelling is incorrect. It is "Kienboch". I was diagnosed with this disease some twenty years ago and was treated with steriods. Recently it has reoccured and the pain is constant. So, I decided to do some research and find out more about the disease. This is what I found: Kienboch is a deteriation of the bone caused by a trauma such as a hard blow to the wrist. Abnormalaties of the lunate bone in the wrist develops following an injury or inflamation. Recurrent pain and stiffness occur in conjunction with thickening, swelling or tenderness in the soft tissues overlaying the lunate bone. Range of motion in the wrist may become limited. To learn more about it contact: NIH, One AMS Circle, Bethesda, MD 20892-3675 (301-495-4484) Hope this helps someone.
Comment 044
dixilady@localnet.com I had surgery for Keinboch disease in 2000.. Was to relieve the pain. Have little rotation, limited use. and severe pain. Never a day without it. Glad so many have had sucess. Any suggestions?
Comment 045
Is there an association between trauma and keinboch's disease? In particular could a bump/jolt/jerk while pushing crates of bread have caused keinboch's disease or have accelerated the process? lnasr@sisa.com.au
Comment 045
Is there an association between trauma and keinboch's disease? In particular could a bump/jolt/jerk while pushing crates of bread have caused keinboch's disease or have accelerated the process? lnasr@sisa.com.au
Comment 046
Debbie allen.sammy@verizon.net I have had a small lump on my index finger for several years. Over the last six months increase in size and pain. Recent xray and mri show enchondroma. Pain is worsening, any way to treat besides OTC meds? Thanks!
Comment 047
Cheri, mamagrange@yahoo.com I have a ganglion cist on my wrist..I would like to know what this is, what causes it, and how to get rid of it...my son plans to write a report over this in his college biology class, so the more info you could give me the better....thanks
Comment 048
To Comment 007: from victoriairiccard@aol.com
My sister has Keinbach disease. She had a few procedures done; including a metal plate (which her body rejected), and then a fusion from a bone in her hip. 18 years later, she's now gotten it in her other wrist. if you'd like to speak with her let me know you're info on how you can be reached
Comment 049
vicky chevalier victoriairiccard@aol.com
my sister, patty, would love to share her experiences with any of you. For a while we felt she was the only one in the country who had this disease! She will be undergoing surgery on her other arm next month. She does not have e-mail access, but if you write me, I will give you her mailing address.
Comment 050
John, jnielsen@ideationdesign.com.au
I am trying to find information about Keinbach disease of the wrist. I have just been told l have it and would like to find some more information. Thankyou.
Comment 051
Try www.darkerblue.com/kienbocks for information on the web. Use Kienbock's Disease in your search. Am also looking for information about treatment in early stages.
cklecak2@msn.com