.Comment 001
no mention of radioisotope used in case presentation
Comment 002
Yes there was comment on the radiopharmaceutical used.
Comment 003
In July 1993 I was diagni=osed as having fatal cardiac amyloidosis hereditary type and told I had less that a year to live. On October 4, 1994 I received a heart transplant at U. Washington MC. Today I feel great. I am very active, strong, full of energy.Ken Willig kawillig@aol.com
Comment 004
In the past year, my father has been diagniosed with amyloidosis. He has been to several doctors including a Dr. Gertz at the Mayo clinic in Rochester, Minn. He has been to the clinci has undergone a treatment in which stem cells from his bone marrow are harvested and collected. They are then frozen to be returned to his body at a later date. At that time, he'll be given radiation and chemotherapy. Unfortunatley, thiÀ ocedure is experimental and has even been put on hold. His condition is getting worse. His symptoms are a burning sensation in his legs and lower part of his stomach. His weight is at 120 lbs, where it was around 160 plus. His age is 53. His voice is weak, he is barely able to walk. He has swelling in his legs and a loss of appititie. He is scheduled to return to the mayo clinic at the end of April to take an oral medication (again, experimental). If there is anyone with any thing to help in his treatment or at least anything to ease the pain and symptoms, please contact me at (502) 782-3176 (ask for Wales).I do not have an E-mail address. As you can imagine, we are desperite for answers in an effort to help our father, Any help would be greatly appreciated.
Comment 005
I was diagnosed with primary systemic amyloidosis clinically confined to the heart in May '94. The disease presented as CHF. Treatment consisted of an autologous bone marrow transplant with stem cell rescue at Boston University Medical Center in August '94. April 13, 1996 I ran 2.5 miles at an 8 minute per mile pace without discomfort. My plan is to increase the mileage and speed over the next months. How much restrictive caç myopathy remains is a question that is going to be answered by me. In the end it is the patient who tells the doctor he is cured. For those similarly afflicted, don't give up hope. I was supposed to be dead 18 months ago. Prognosis reports of my imminent demise proved premature. jhelwig@gpu.com