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.Comment 001

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Comment 002

The resolution of the CT scan was low and this made it hard to characterize the lesion.

Comment 003

We are the friends of a family with a thirteen year old boy who has a recurring osteogenic sarcoma tumor. We are searching for any types of treatment for this kind of cancer. The family is extremely interested in alternative medicines. Any information would be extremely helpful. Thanks BT

Comment 004

What was operation procedure, if any. Was mass removed? Dr. Philip Zack

Comment 005

Interested in info, internet pointers, anything about children osteosarcoma Kjetil Skotheim (kjetilsk@usit.uio.no)

Comment 006

We are the family of a 35 yr. old female who has fibrosacroma of the femur bone. Any help would be appreciated. Knelson 917

Comment 007

My uncle, Hubert purvis, died in 1934 of Hermic Tubuentor Osteomyelitis, is this similar to bone cancer? He lived three years with it and died at the age of 4, is this common for time ? How would it been treated then during his three year stay at the kosair Crippled Childrens home in Louisville, KY? How can I find more info on him or this disease? Vpurvis@iglou.com

Comment 008

The MRI image seems far too small {even with help of magnifying glass} tp permit thorough inspection. Overall I am very impressed with your teaching cases. Dr. Michael England FRCPC Diagnostic radiologist Saint John Regional Hospital PO box 2100 Saint John NB Canada mengland@nbnet.nb.ca

Comment 009

It would have more interesting if an image of the histopathology was submitted. Dr Pierre-Yves Sonke, NY USA E-mail: wuhl@lilrc.lilrc.org

Comment 010

My daugther had osteogenic sarcoma ten years ago in the upper arm. The bone was replaced with a bone from the leg plus another bone. Operation was done at Mayo. Would like to hear from anyone who had same operation Send e-mai to RockingFLL.aol.com

Comment 011

Approx. 25 pathologists from Colo. to Mich. studied my 8 yr. old daughter's biopsy, prompted by perished bone (1/4 moon shaped from top of lower right jaw, "down") and 5 perished teeth (3 baby, 2 un-erupted adult) and and a 3 cm. lesion or growth. Growth is osteoblast enriched & a dozen other "tech" terms. Only one renowned pathologist in Chicago, diagnosed "suggestive" Chronic Sclerosing Osteo- myelitis. Denver Path.ylso found no classic osteosarcoma features. Several Pathologists in Denver suggest possible "unusual juvenile active ossifying firoma". Oral Surgeon initially stated he removed all the expanded bone & tissue but immediately after swelling from surgery subsided, the "growth" is still present & obvious. She took antibiotics for 10 days following surgery, but "my" medical journal suggests 6 weeks of antibiotics for chronic osteomyelitis. Today: Pediatrician took blood tests, suggests bone scan if blood shows problematic signs. Pediatrician also examined daughter for occasional "severe" leg pain in Jan. prior to the Jaw problem. Pain seems to be "not" in the joints. Leg pain related to jaw destruction? I'm scared. 5 teeth re- moved, hole in her jawbone, large growth only half removed, then sent home to "watch" for either regeneration, or further degeneration. Any help for a teary eyed weary dad & angel child? paul@bbs.macatawa.com THANK YOU!

Comment 012

I just wanted to note that the radiographs did not reproduce well on the computer. There is software available to improve the contrast of the jpg or gif scanned image file without significantly distorting the image. I do however appreciate the time and effort it took to display this case on the internet, and I certainly must say thank you. I hope that you continue to present cases to the world at large for oudntinuing efforts to keep up in medicine as well as for the clients to see that medicine is far from differences in interpretation of data and opinion. Farewell. Don

Comment 013

I have a 16-year-old nephew to whom was diagnosticated an Osteosarcoma (Sarcoma osteogénico, predominantly Osteoblástico) in his Left humorous, i want to know experience about that. mcbello@ibm.net

Comment 014

I am a 38 yr old female cancer survivor. I was diagnosed with osteogenic sarcoma in 1971.(25 yrs ago)on my right leg.It spread in 1974 to my right lung. I was diagnosed with breast cancer in 1988. I've survived all of this but now have fibromyalgia. Any other long term survivors out there? I received all of my treatments at University Hospital in Madison Wi. My email address is Snaparoo@aol.com(til Jan 3rd) Then ?

Comment 015

WHERE IS THE PLAIN FILM? you gotta start there. no one does a bone scan only.

Comment 016

My boyfriend was diagnosed with an osteosarcoma in his left femur. They are giving him four treatments of chemo and then in the middle or end of February, he will have the tumor removed and it will be replaced with a donor bone. After healing from this for a few weeks, he will go through 4 more chemos. The chemos are every 21 days. No e-mail address but can write to: Jenny Roth 20560 SR 34

Comment 016

Comment 017

In comment #16, the address should read: Jenny Roth 20560 SR 34 STRYKER, OH 43557

Comment 017

In comment #16, the address should read: Jenny Roth 20560 SR 34 STRYKER, OH 43557

Comment 017

In comment #16, the address should read: Jenny Roth 20560 SR 34 STRYKER, OH 43557

Comment 017

In comment #16, the address should read: Jenny Roth 20560 SR 34 STRYKER, OH 43557 Your comments or questions are welcome.

Comment 017

Your comments and questions are welcome. In comment #16, the address should read: Jenny Roth 20560 SR 34 STRYKER, OH 43557

Comment 017

On case comment #16, the address should read: Jenny Roth 20560 SR 34 Stryker, OH 43557. Any comments or questions are welcome.

Comment 018

I was diagnosed with osteogenic sarcoma on my left proximal femur in 1989 and had chemo & surgery at Memorial Sloan Kettering Cancer Center. This went on for about a year, and now, in 1997, I am doing fine, cancer-wise. If I can help anyone out with my experiences, don't hesitate to email me at knewman4@juno.com

Comment 019

My name is Jon, and I am 15 yrs. old and was diagnosed on April 1st 1996 (April Fools Day) with osteosarcoma. It spread to both lungs (about 2 dozen nodules), and near my hip. I had to infected bone in my right leg removed, and got a total knee and partial femur replacement. I had lung surgery too, but the tumors there were gone by that time from chemo. I have been going through this for about a year and I am almost finið, so if anyone has any questions, e-mail me- jonbeaven@juno.com

Comment 019

Comment 020

My father inlaw was diagnosed with osteomyelitis of the mamdible. What causes this? Is there any treatment,or medications? How serious is this problem? Warren Turtle888@aol.com

Comment 021

Comment 022

My brother was diagnosed with osteo sarcoma in 1994. At that time the cancer was removed by taking out part of his femur and replacing it with a donor bone. He wasn't given any chemotherapy at the time. In 1996, he was diagnosed with cancer again, this time it had spread to his lung. At this point, he was given chemotherapy to treat the cancer. However,now, a year later the cancer has recurred in his lung. If yave any information that can help us help him please contact me at may325@concentric.net

Comment 022

Comment 023

***** continuation from comment 22 ****** If you have any information or can point us in the right direction so we can help him, or if you know the latest treatments, please contact me at may325@concentric.net

Comment 024

I wanted to know about intraarterial quimioterapic, after approach surgery in this case.

Comment 025

I am a 44 yr. old female who was recently diagnosed with osteosarcoma of the right maxillary sinus. First, I underwent surgery for the removal of the tumor along with a failed reconstruction of the palate, zygoma, and occipital bones. I'm in my third week of chemotheraphy; I'm receiving a combination of high dose methotrexate, ifosfamide and adriamycin. I have refused to take cisplatin because of the potentially permanent si‡ffect of hearing loss. I'm interested in hearing from other people with osteosarcoma in the jaws or head region. I'd also like to know what kinds of alternative treatments are available. Contact me at kwatt@inch.com

Comment 026

the correct e-mail address for comment 25 is watt@inch.com

Comment 027

Hi, my name is Casey Johnson and I am from Nekoosa, WI.(by Wis. Rapids) I was diagnosed with osteogenic sarcoma in May of 1995. The cancer was in the fibula in my right leg. I was fortunate to catch it at a early stage. The doctor was able to save most of my knee. I went through 6 chemo treatments before the surgery(Aug. 1995), and 12 after the surgery. The doctor in Marshfield(Saint Joseph's hospital) removedÌ inches of my fibula and replaced it with my tibia from my left leg along with cadaver chips, and a 10 in metal plate and 12 screws. The main reason I am making a comment is because something really scary is happening in the town of Nekoosa. 3 others since I was diagnosed have also been diagnosed with this horrible disease. I was 15 and got diagnosed in may of 1995, Brandon Naylor was 24 and was diagnosed in september of 1995, Erin Bindel was 17 and diagnosed in September of 1997, and finally Stacey Sainsbury who is 15 wa just diagnosed november of 1997. I also heard that 3 others were diagnosed recently. I don't know if that is a fact. I think something is definately wrong in this small town. We are surrounded by two paper mills and two chemical plants, and I think they play a major role in the diagnosesof this horrible disease. Please E-Mail me at rrjohn@wctc.net if you hear anything about this, or just if you have any comments. Or you can write to me at 1670 Springhill Ln. Port Edwards, WI 54469

Comment 028

My daugter is going in tomorrow, probably for a biopsy. The MRI did'nt look good today. But I did want to say this is an excellent site to get some initial information, thanks. tomhickman@compuserve.com

Comment 029

Hello, My name is William; I'm from Welch West Virginia. About 4 months ago I had a friend that was diagnosed with osteosarcoma of the distal area of the R. Femur. There was some trauma to that area from playing softball. For the last 2 to 3 months he's been recieving chemotherapy at Ruby Memoral Hospital in Morgantown WV. They have now sent him to somewhere in Pittsburg and whoever he seen up there wants to do surgery to ìrt a steel rod through the bone, which will prevent all flexion of the knee joint. Is this a common treatment and if so are there any other specialists that are highly recommended with expertice in this class of cancer. Prompt response would greatly be appreciated. Thank you: William Kibbey. Kibbey21@mailexcite.com

Comment 030

My sister was diagnosed with osteogenic sarcoma in 1989, she passed away in 1992, as the cancer had spread to her lungs. Recently I discover that my boyfriends brother also has osteogenic sarcoma of the right femur/tibia. He is 16, he also has spots in his lungs. I would appreciate any current research information on this type of cancer. Please email me at ymamcw@cleannet.net Thankyou

Comment 031

Hello, my name is Chris Lelieur. I have a really close friend who was diagnosed with osteogenic sarcoma of the femur. She will be 2 years cancer free Dec. 17 of this year. She is now 17 years old, and doing great. She had to have one of her lungs removed, since it had spread. She can't jump, run, and is slow on stairs. If there is anybody out there who would like to give me more information about the disease, and what the long term effects, I would be greatly appreciated. E-mail me at CAL12079@aol.com Thank you very much.

Comment 032

I am friends with the parents of a 7 1/2 yr. old boy who today received the devastating diagnosis of osteosarcoma. My knowledge of his case is limited except that it is in his femur just above the knee. He has apparently had no symptoms other than leg pain off and on (growing pains?) over the last 2-3 weeks. His parents took him to the hospital last evening as the pain failed to subside and began to cause problems walking&e won't know for the next couple of days the results of tests (MRI, etc.) and therefore don't know if this has spread. The parents (like myself) are new to the Denver, CO area and don't know quite where to turn. For starters, does anyone know anything about the reputation of the pediatric oncology dept. at the Denver Children's Hospital? Also where are the best places to learn about the most current treatment available? Lastly as all of you in this board have been or are going thru the same situation, what advice or direction can you offer these devastated parents. As they are spending their time in the hospital with their son, I am exploring the internet on their behalf. Any reponses to me will be greatly appreciated and immediately forwarded to the family. Thank you in advance. I can be reached by email at JMarki@aol.com or by phone during the day at 303-645-8761.

Comment 033

kkp@pop.cwru.edu good case but the CT and MR images not great or adequate

Comment 034

Loretta Jackson jjjax@webth.net My husband was diagnosed with an Osteogenic Sarcoma in 1994, in his head. It has never been noted anyplace else but has reoccurred 3 times. He has had 3 surgeries to remove it and all of the radiation he can have. It is present again with no more surgery without a followup plan. He has been a patient at Duke. We are looking for anyone who may know a possible direction to take. e-mail jj¹webtv.net

Comment 035

On Comment 034 the e-mail address should read jjjax@webtv.net. I thought that was what I typed, but, Oh well!

Comment 036

Comment 037

My girlfriend has a tumor in her left femur, we go to have a biopsy today. They are hoping to find that it is Osteo Myelitis, if not it has many characteristics of Ewings disease. Any information would be greatly appreciated. mbondandassoc@iquest.net

Comment 038

I am not sure if this site is updated, as it is now july, 2000. I am responding to Snaparoo...the 38 yr old osteo survivor. I was diagnosed with osteogenic sarcoma in 1967, had my right leg amputated above the knee, had three lung surgeries, went 30 yrs cancer free..then diagnosed with breast cancer. Not many of us Old time survivors of osteo out there. Please respond to TCBoomer@aol.com Thank you. Carol

Comment 039

I'm Hussein Rabei nuclear medicine resident, I would aske about the skip lesion and its criteria and is any lesion even in close contact to 1ry considerd skip one. The bone scan of this case is very good rgarding rsolution however the x-ray, ct and MRI are hazy my contact me at el_gayar @hotmail com.

Comment 040

My daughter has osteogenic sarcoma in her left jaw bone. She has had 6 reacurrances. She lost her eye in February 2000. If someone has a similar case, we would like to hear from you.My e-mail # is cow_lady_95948

Comment 040

Comment 041

Comment for 003 My son had osteosarcoma, Please contact me if you need some information about it.His treatment was in NY City Sloane Ketterin Cancer Center.Thay use extra kind of Chemo.. and they belive that is the better way for cure. The rate of cure is more,About %80. My email addres is Kmahboubian@aol.com

Comment 042

Hi there, my name is Frieda Pienaar from South Africa. My son is diagnosed with osteosarcoma in his left femur. Unfortunately it spread to his lungs. He had his first chemo and his starting to fall out. He will receive every 3rd week chemo and then he will get a operation to remove the tumour and replaced with a prostecis? (sorry I am Afrikaans) People with similar cases can contact me I want to find out more about this cancer and what to expect. My son is 13 his name is Nico. My e-mail address is frieda.pienaar@za.didata.com.

Comment 043

i was first diagnosed with osteosarcome in 1997 after succesful treatment/surgery i relapsed in 1999 in my tibia,6th left rib and recently my arm i previously went through treant ment and surgery on my rib and tibia when we found out about the new site in the arm we went to a 2nd opinion that 2nd opinion directed us to a dr. at the mayo clinic who has cured 3 of 3 people with osteosarcoma using a stem cell transplant and treatment called somarium then radiation to the site the process is almost all outpatient and has very few side effects.. low blood count.. and has been incredibly succesful

Comment 044

My daughter is a 28 year old single school teacher who is engaged to marry this coming June. Approximately 2 months ago, she experienced pain and swelling to her left fibula. It was thought to possible be a sarcoma. Her mri was not very hopeful. She is scheduled for an open biopsy Monday. I'm afraid for her. I wanted the surgeon to first perform a cut-neddle biopy to decrease the risk of seeding malignant cells in case the mass is malignant, but this is not the procedure he follows. Can anyone give me any insights on this procedure, also, would it be more beneficial for her to be seen at M>D> Anderson Cancer center instead of our local surgeon? Would appreciate any information or comments that may help. Thank You. My address is jksf@eatel.net.

Comment 045

Sir/Madam I am suffering form chronic osteo myelitis (left femur) since 12 year back. I had been operated 10 years back, but during these periods i always have problems. Now I am having an abcess on my left thigh. I would like to know is there any parmanent cure for this disease or not. If there please guide me.

my email address ajay291176@hotmail.com

Comment 045

Sir/Madam I am suffering form chronic osteo myelitis (left femur) since 12 year back. I had been operated 10 years back, but during these periods i always have problems. Now I am having an abcess on my left thigh. I would like to know is there any permanent cure for this disease or not. If there please guide me.

my email address ajay291176@hotmail.com

Comment 046

Dear Sir, It is stated that I am suffering from ZYGOMA and remained under treatment of doctors.City Scan report has been obtainedin which it is preserved that my eye sight, Hearing power, Speaking power or brain problem can be raised. I am very much worried about my health and unable to set big risk. (Fracture under left eye clearly visible)Report attached. I think its proper treatment is impossible in our country (Pakistan). I am financially sound and can bear all such expenditures of treatmentin in Abroad. I have got informations through internet services and reached to this that I should contact your wortly organisation for treatment. In the obove cited circumstances,requested that I may very kindly be given an oppointment to get proper treatment and also intimate possible expenses,So as to proseedfurther in this matter accordingly.I am anxiously waiting for an innedietly Roply,

THANKING YOU. YOUR FATHFULLY NAME: MUHAMMAD FIAZ MIRZA PHONE NO: 258171 FAX NO: 257266 E-MAIL : miassint@yahoo.com POSTAL AD:GILL ROAD WAZIR COLONY DIPOT STREET GUJRANWAL PAKISTAN.

Comment 046

THANKING YOU. YOUR FATHFULLY NAME: MUHAMMAD FIAZ MIRZA PHONE NO: 258171 FAX NO: 257266 E-MAIL : miassint@yahoo.com POSTAL AD:GILL ROAD WAZIR COLONY DIPOT STREET GUJRANWAL PAKISTAN.

Comment 047

My nephew a 14 year old boy is diagnosed with osteosarcoma in his knee. The tumor is the size of the hand and he has just been diagnosed. pain began a month ago. we are from Chile and we want to travel abroad to the best place for the treatment of this type of cancer. please send us information, here there are few possibilities

Comment 048

Comment 049

we have a cse of scleroing patch in left proxymal tibia not invade cortex since one year we do open biopsy which diagnosed as low grade osteosrcoma we do excition of upper two third of tibia to half of femur of diseased limb . we use chemotherapy preoperative for 4 cycle in 3 months and postoperative for 4 cycle in 3 months . no we find another sclerosing patch in other distal femur which not present before in bone survay or isotope scan what your diagnosis. please we want fast answer. thanks

Comment 050

My nephew was diagnosed (age 8) with Osteosarcoma and had a distal femur implant, he has just today (age 15)been told he has the monstrosity in his other leg. His mother is a double amputee from Osteosarcoma, I wonder could anyone tell me what are the odds of a 3rd reoccurance?

Comment 051

in response to comment 003, we were in a similar situation in 2001. our daughter was diagnosed with osteosarcoma in her right femur. we used traditional medicine as well as alternative medicine. If you would like more info e-mail us - jeannetterussell@hotmail.com. I also recommend any one with cancer purchase a Moss Report at cancerdecisions.com. We found it to be extremely helpful with decisions. Good Luck!

Comment 052

I am a 32 year old male with osteosarcoma of the proximal tibia. I have finished all my chemo and had limb salvage operation. I'm feeling awesome and I have recovered almost full function with my reconstructed leg. I'm looking to find anyone who has had a total knee and tibia endoprothesis installed with a gastrocnemius flap. I am interested in hearing about functional outcomes with a substantial reconstruction of the leg. email me @ mikenancke@hotmail.com

Comment 053

My best for this pt. the radiological sequences shown were not of adequate quality and may be improved.keep up the good work.M babar khan,dr_baber khan@hotmail.com.

Comment 054

Jackie Peck jackiepeck@msn.com

My sister Elaine was diagnosed with an osteo-sarcoma in her right knee.We were told that she'd need chemo first and then a knee replacement. The chemo was intense and she had really bad reactions to it, in particular metotrexate, which they stopped early on in the treatment. She couldn't have the full course but they gave her what they could, or, what she could take. Most people loose their hair and get violently sick, Elaine got really bad and suffered a lot! They subsequenlty removed her knee and replaced it successfully and she had to do the same ammount of chemo as before after the op'! She had the same bad reaction to the chemo as before and towards the end of it, we were very worried, my mum had said to the doctors that there was somehting wrong, as a mum maybe she had some foresight into something nobody could pick up on and she developed colitis. The last dose of chemo almost killed her! her large bowell died and she had major organ failure. They had to remove her large bowell while her blood wasn't clotting and they prepared us for the worst. Elaine made it through with flying colours after almost six weeks of intensive care!She is a walking miracle but after a seizure last Friday, thay found four tumours in her right lung. Elaine is due for surgery next week to remove them and she is petrified as you can imagine!Things are looking good as far as the doc's are concerned, which is a great help and we are all very positive at the moment! Has anyone out there had a similar experience? I know this type of reaction is rare but it would help us if we knew of anyone who's been through similar! Elaine is in Dublin Ireland I live in Middlesex England, I love her to bits ,can anyone help? Please???? Jackie Peck Home-0208 427 8071 " " Mobile-07956 257 526 " " jackiepeck@msn.com

Comment 055

must always get a bone scan!!!

Comment 056

My name is Walt Schebel Email unknown43434@hotmail.com I had osteo sarcoma in my knee check my website for more info www.geocities.com/cancerfree43/cancer

Comment 057

Comment 060

hola mi nombre es ysangie guzman, a mi mama le detectaron osteosarcoma y quisiera saber de algun tratamiento o alguna otra cosa que se puede hacer para remediar este caso, por favor estoy muy angustiada, ayudenme con esto, envienme sus respuestas al e-mail ygusablue@hotmail.com. necesito la respuesta lo antes posible. gracias.

Comment 061

My name is Brandon. I m 24 . first diagnosed with osteogenic sarcoma in 2000 . In my right leg. Had chemo and knee replacement in 2000 . The chemo was ruff. I finished treatments in March 2001. In febuary 2003 it recurred in left lung and i had it removed and then i did well. Then about a month ago at check up i had another recurrance to left lung (feb.3, 2004) . I had a surgery to remove tumor on feb. 20th , a thoracotomy , kind of tuff , but now it is feb 5th and im doing pretty good. i had a second tumor that was nt known at time of ct scan but was removed also. I go to children s hospital i n columbus , ohio . Would like to hear from others and their expieriences . Being positive , family , friends and prayers has helped greatly. E mail ray_45331@yahoo.com . God Bless.

Comment 062

EMAIL ID leodear@indiatimes.com I AM AN AMPUITEE LEFT LEG.I AM TRYING TO SEARCH ANY SUCCESFUL TRANSPLANTATION OF LEG DONE BEFORE OR ANY RESEARCH GOING ON OR WHERE TO CONTACT...iVE LOST HOPE TO WALK AGAIN.KINDLY HELP.

Comment 063

karing @hotmail.com My son, now 21, had osteo sarcoma in 2001 and had part of tibia, knee and part of femur replaced. He also had several tumors in both lungs, they too had been removed and he received 32weeks of chemo, with the last one in April 2002. Things were fine until last week when he had chest pain and trouble breathing. We found out the he in fact has another mass about 3.6cm in left lung, surgery is scheduled for July 22 to remove left lung lope. Is more chemo an option? and what are the survival chances? If you have any experience or sugestions for alternatives please let me know. Worried in VA.